Because Als Is Underfunded, Patients Have Had

I Have Been Diagnosed With Amyotrophic Lateral Sclerosis (als). It's A Terminal Disease With An Average Lifespan Of Two To Five Years Post-diagnosis, And Scientists Don't Know What Causes It. Als Prevents Your Brain From Talking To Your Muscles. As A Result, Muscles Die. As A Result, Every 90 Minutes People Die. I Am A Person.

If We Have A Purpose In Life Beyond Being A Cog In The Human Machine, Mine Is To Help Inspire People And That's Pretty Cool. I Would Like To Motivate The World.

We All Have A Timeline. Most Of Us Don't Live Like We Have A Timeline.

A Terminal Diagnosis Can Really Mess With Your Head. Honestly, It Makes You Want To Run Away To The Moon. Many Als Patients Want To Fade Away Quietly. This Was Not For Me.

Many Als Patients End Up Fading Away Quietly And Dying. For Me, This Was Not Ok. I Did Not Want To Fade Away Quietly.